Other Resources

Patient advocacy organizations
National Organization for Rare Disorders (NORD)

Preemie Parent Alliance (PPA)

Degl, Jennifer. From Hope to Joy: A Memoir of a Mother’s Determination and Her Micro Preemie’s Struggle to Beat the Odds. Mahopac Falls, NY: Lemon Tree, 2013. Print.

Mathews, Kasey. Preemie: Lessons in Love, Life and Motherhood. Hobart, NY: Hatherleigh, 2012. Print.

Spillane, Timothy. Four before Their Time: A Story of Hope, Resilience and Miracles. N.p.: SkitterBird, LLC., 2014. Print.

Historical fiction
Rocque, Bernice L. Until the Robin Walks on Snow. Trumbull, CT: 3Houses, 2012. Print.